In the News
Join PRAF today for #GivingTuesdayNow
Join the Patients Rights Action Fund Today for #GivingTuesdayNow Give $5 today on 5/5 and your gift will be matched! At a time when we are all experiencing the pandemic, generosity is what brings us all together and will get us through it. Generosity gives everyone the power to make a positive change in
#GivingTuesdayNow is Today!
Today is #GivingTuesdayNow, a new global day of giving that unites us all through generosity. Today, we have the power to heal communities in good times and bad. A global threat like COVID-19 touches every person on the planet, and it presents an opportunity to come together as a global community. Give $5 and your
‘This Is Really Life or Death.’ For People With Disabilities, Coronavirus Is Making It Harder Than Ever to Receive Care
…Roughly one in four adults in the U.S. has a disability, and an estimated 60% of Americans have at least one chronic health condition that could make the symptoms of COVID-19 more severe or deadly. Even in normal times, people with disabilities and chronic illnesses confront biases in medical care, face waiting lists to
Medical Rationing: When Disability Bias Hides Behind A Magical “Invisibility” Cloak
“Among the rationing plans being discussed to respond to the strain the surge in coronavirus cases is expected to place on the capabilities of hospitals in some cases, the Pittsburgh Model Plan Regarding the Allocation of Scarce Critical Care Resources during a Public Health Emergency (1) is being given the most play. The Plan would
NDY’s 24th Anniversary: Never Has the Fight For Our Lives Been More Urgent
Today, in the midst of the COVID-19 pandemic, the plague scene from Monty Python and the Holy Grail hits painfully close to home, as an older man is thrown on a dead body cart, protesting he’s “not dead” – yet. Today, we’re seeing countless medical triage policies that would literally throw older and disabled
HHS rejects disability, age-based medical rationing
Click here to watch Roger Severino, director of the HHS Office for Civil Rights, as he joins Shannon Bream on ‘Fox News @ Night.’ “We do have these protections to make sure that illegitimate criteria, especially weighing the relative worth of one person versus another…we owe it to people…to give them clear guidelines so
Coronavirus Strains Safety Net for People With Disabilities
Damian Gregory worries about the things that have quickly become normal to worry about in the coronavirus era: Is there Clorox at the grocery store this week? When will social distancing end? Will he and his family stay healthy until a vaccine is found? But the 46-year-old consultant and advocate, who has cerebral palsy, says
PRAF’s 2020 Winter Newsletter
Please click here to view our 2020 winter newsletter…
We urgently need federal triage protocols that ethically and legally ensure equal access to care
As the COVID-19 pandemic hurdles us to the breaking point of our medical system in various hot spots across the country, we are being forced to face our faults and our fears in the raw. As a first responder, I have seen the issues with providing quality care for everyone in the current environment. Despite
Social Distancing May Increase Suicide Risk
(GETTY IMAGES) STRESS CAUSED BY widespread social distancing to blunt the spread of the coronavirus may be creating the unintended consequence of increasing the risk of suicide in the general population, according to new research published in JAMA Psychiatry. The study – “Suicide Mortality and Coronavirus Disease 2019 – A Perfect Storm?” – identifies a
What Covid-19 has revealed about assisted suicide and euthanasia
There has not been, in living memory, more focus on healthcare, the vital role of doctors, the sacrifices made by nurses, and the wonderful efforts of everyone involved in the sector. Amid the coronavirus crisis, daily heroism, the scale of human loss, and the awful scenes in hospitals underline what is important – and what
Disabled people like me have always been vulnerable to disease
I keep hearing about how disabled people are panicked over covid-19. As a disabled person, I know this is true… The fear and outrage are real. I was born with spinal muscular atrophy (SMA), a neuromuscular weakness, and have never stood or walked. My respiratory muscles are so weak that the slightest cold could kill me. So
US suicide rate climbs 35% since 1999, new report finds
The suicide rate in the United States continues to rise, increasing 35% for almost two decades from 1999 through 2018, according to a new data brief released by the National Center for Health Statistics on Wednesday. The report included mortality data from the center’s National Vital Statistics System. The data showed that the suicide
Diane Coleman Addresses the Issue of Rationing Health Care and COVID-19
“COVID-19 has brought the ever present issue of rationing of health care to the forefront. It is not a comfortable issue to discuss but one the disability community and our allies deal with everyday.” Diane Coleman addresses this issue as well as outlining the mission of Not Dead Yet on Barrier Free Futures.
Suicide should not be pushed as a solution right now
In a recent Letter to the Editor (“A good time to take action on end-of-life options,” by Eric J. Ruby, M.D., Taunton Gazette, March 31), the author used the coronavirus pandemic as an opportunity to urge state legislators to pass the “End of Life Option Act” (H.1926). There is never a good time to
Dangers of physician assisted suicide
Regarding the recent letter from Don P. Perez, MD, I must respectfully yet strenuously disagree. His letter opined that in spite of the coronavirus outbreak state legislators must move forward on passing H. 1926 and S. 1208 which would legalize physician assisted suicide (PAS) in Massachusetts. Actually, it is because of the coronavirus outbreak
Palliative care must be more accessible
The New York State Legislature should promote skilled end-of-life care rather than focusing on ending life prematurely. The International Association of Hospice and Palliative Care recently published (Journal of Palliative Medicine 2017; 20:8-13) a studied position statement (Journal of Palliative Medicine 2017; 20:8-13). In it they conclude: “No country or state should consider the
PRAF Commends OCR’s Call for Equity During Pandemic Triage
“We are grateful that the Office of Civil Rights and the Administration heard the call for equity in triage and the allocation of scarce medical resources by issuing guidance reminding states, hospitals, and medical providers that discrimination will not stand. It is unthinkable, however, that the HHS General Counsel could limit the scope of this guidance by
U.S. Civil Rights Office Rejects Rationing Medical Care Based on Disability, Age
The director of the federal health department’s civil rights office said on Saturday that his office was opening a series of civil rights investigations to ensure that states did not allow medical providers to discriminate on the basis of disabilities, race, age or certain other factors when deciding who would receive lifesaving medical care
BULLETIN: Civil Rights, HIPAA, and the Coronavirus Disease 2019 (COVID-19)
In light of the Public Health Emergency concerning the coronavirus disease 2019 (COVID-19), the Office for Civil Rights (OCR) at the U.S. Department of Health and Human Services (HHS) is providing this bulletin to ensure that entities covered by civil rights authorities keep in mind their obligations under laws and regulations that prohibit discrimination